Twins are 2yrs today

[shel311]

GREAT stuff man!!!

[ChampDizzle]

that is great, looks like Alec is ready to take on the world! Beautiful family, thoughts and prayers to a wonderful new journey.

[plasma1896]

the pics are great. good stuff bro!

[Uuaww]

good stuff... nowwwww welcome to sleepless nights. on the plus side, you can be up with the kids, hop on the ndl forum and chances are me and/or shel (the night workers) will be online posting. Itll be good to get a 3rd input haha.

[Bernie32]

congratz bud, glad everything is working out and hope it continues to do so

[jsence2]

Sorry man, didn't get your PM till just a bit ago.

Way to go man, so glad to see them healthy and home!!! I'll continue to keep you guys in thoughts and prayers!

[UCWeiser]

Good stuff.

Looks like Alec knows where he's going with that smile.

[trendon]

What is/was your oldest's take on everything that was happening?

[TerpsMustDie]

That's awesome Steel! I'm very happy for you and your family, and I pray for their continued good health.

[The_Niddler]

I have no idea how I missed this thread in the last few months, but I am soo happy for you to hear that everything turned out well.

You have a beautiful family and I wish you all the best.

[steelcitychaos]

What is/was your oldest's take on everything that was happening?

He has had a rough time, probably wont really know until he is 18. At first when we would go visit our son we would let him go spend time with grandparents but then when we would play with him, like cars,building things, he would start to act out and say dont leave me stay home with me. So the wife and I would switch everyother day one of us would go to the hospital and the other would stay with him. On the weekends we would give him the choice if he wanted to go with us to the hospital or stay with grandparents. We worked that all the way until Alec was moved to Denver on june 18, from then until he came home this past Monday we would stay with friends every weekend so he could play with there kids, he loved it. But this week since we have been home he misses playing with those kids, especially since the wife and I have been trying to get on a schedule with the medication and feedings for Alec. we have made time for him by going to the movies, going to chuckie cheese, etc since this has all started in February, but to be honest we really dont really know how he is doing with the situation or if we are doing a good job with him. This is one of those times where parents dont have a manual that shows them the right and wrong on how to handle things, you just have to go off what you see and what you feel and hope that eveyone knows that you are doing your best.

[ajalves]

very very cool stuff....

[Cnasty]

So awesome man.

They look great and amazing family you have there.

[buckeye76]

Awsome news! very good to hear.....

[texasfan4444]

Awesome stuff man. I cant fathom the reflief you felt when they said it was time to take him home. Praying that all will continue to go well. You have an awesome looking family bro. I will continue to pray for you guys.

[steelcitychaos]

Reading over this thread it is amazing that it has only been 2 years especially how it started out, but I am happy to report that all 5 of us have made it through everything and the twins are celebrating their 2nd birthday today. Alec has come a long way but he has overcome more than anyone thought he would. We met up with his Dr's when he was first diagnosed and they said it now that when he was first sick, in their professional opinions they didn’t think he would come through it alive, but they also said that with Kids it’s hard to determine what will happen when they are stricken with a life or death situation because, the power of life with kids is so strong that you can never rule out the fact that a child will pull through and live on especially when it looks like there is no hope.

Alec is progressing very well, the only thing he still has to use is a feeding tube for 14 hours out of the day, but the Dr's have been decreasing that every Dr visit because they strongly feel that he will be able to come off of it and eat and drink everything he needs through the mouth. Based off of their 18 month visit, Alec weighed 26 pds and he brother Jake comes in at 31pds, they visit the DR tomorrow so we hope and expect those will be a little higher.

Below is a picture of the family

Mom/Wife-Riss, Father/Dad/NDler, Myself(Joe), Alec is bottom Left, Jake is next and Big Brother Carter is on the Right.

[shel311]

Awesome stuff!!!

[plasma1896]

enjoy those kids when they are babies bro, they grow like weeds. very fast. i remember changing my daughters diapers, and now she is a freshman in high school. have a great time celebrating the birthdays today!

[ajalves]

Great update Steel

[Cnasty]

Beautiful family man, can't wait for my little one to get here.